Showing posts with label One Person's Voice. Show all posts
Showing posts with label One Person's Voice. Show all posts

Wednesday, September 30, 2009

Jessica Penner is a Poet


Jessica Penner is a sunny person. She and I sat together for over an hour-and-a-half, talking about life, health, the insurance industry, traveling, writing, making a living. She laughed a lot and made me laugh.

There isn't enough time in a news feature to tell more than a snippet of Jessica's story. As a very small child she was diagnosed with Ollier's Disease, which meant that her childhood was filled with what sounds like a succession of brutal surgeries. Jessica, being Jessica, speaks of these surgeries in positive terms, saying they kept her out of a wheelchair.

As a college student she began having seizures, which lead to the discovery of an enormous brain tumor.  Jessica, being Jessica, is quick to point out it was a non-malignant brain tumor. The story of her battle with her insurance company to get the needed treatment is what's reported in the "One Person's Voice" I put together for WMRA's Morning Edition. A longer version is available on the web.

 But enough about illness. Jessica Penner has a day job that pays the rent; a night job as a poet. Here, for your reading pleasure, are a couple of her poems.


OCTOBER 6, 1981

The day Anwar Sadat was assassinated
my parents drove east, toward a city I'd never seen.
We'd passed the empty fields curving west,
the tractors standing idle, cold.
My daddy, thinner then, was at the wheel
of our silver-fish car.
Mommy was knitting, the sun glowing
through her hair.
And there I was in the back, alone
on the cracked red seat,
fake leather that burned your skin
when you hopped in after swimming.
We skimmed the surface of faint hills,
glassed ponds, a twisted tree, alone in emptiness.
Cows with misted eyes huddled in the early chill.
I sat waiting to be hurtled into the arms of men
in the towers of that city;
men who would fool me with their benign khakis and ties,
only to wear cold white white white gowns
as I was arranged in a green bed without socks.

Before the day of The Towers,
I stepped from a plane into Cairo,
where gleaming white-uniformed men pointed rifles--
not at me, but the crowds before me
who twisted and swelled
like the fields we'd slipped through so easily,
as if the world of knives would solve our souls,
could carve me a freed forever body.
As though my father's expert trolling
of his silver could straighten the tree on the hill.
The sun rose in the east,
a backlight to a single minaret,
cloaked in the smog and sweat of 17 million.
The river glided through her basin,
echoing the tilted voices of me
calling me to pray.
Calling me to bow.
Strangely, I felt at home.

WORCESTER'S POET

Master of the whale-roads,
let the white wings of the gulls
spread out their cover.
You have become like us,
disgraced and mortal.
              from "The Wellfleet Whale" by Stanley Kunitz

one
There are those who would say Blue Mountains climb
so low because they are strident with youth
rather than age. I tended to believe
this contradiction as we crossed the soft
valleys that lay like a covered child.
We whispered a conversation within
hearing of the never-young-nor-old man
driving the darkness, pushing in the night,
away from faint lights to the brighter orb--
this Poet, whose frail voice managed to sound
through the wind of those snuffle-shoulders.
You slipped your hand snug under my neck that
slid in cold that solidified words spun
far too carefully divine to speak of.
Life-anointed, your hand cradled my head,
drew mantles against my too-muscled death;
ranges of Mountains beat with youth not age.

two
We stroked through the lake beside Bethesda,
like the night we rolled through dim neighborhoods,
searching for the home-face of a Poet
whose whale lay upon the sand, gasping breath,
as if the struggle might make the difference.
Your hair was muffled rather than shone by the lopsided streetlights that hid numbers
of discovery from our steadfast gaze.
A crowd of ancient houses stood upon
ground willing to hold the Poet's birth-place--
but there was no shrine to state his glory,
no proof that he ever drew a whale's breath
in a city I would curse if your face
had not pricked radiation's hold on skin
that loosened hair upon pillows like chaff.
We stroked through the lake beside an angel
who healed with a beat of wings light as stone.

Monday, September 28, 2009

It's hard to debate experience . . .

I'm currently editing a WMRA's "One Person's Voice" segment that I hope (do cross your fingers, please) will be ready to air during Wednesday's Morning Edition. It is the story of Jessica Penner, a young woman who's been dealing with Ollier's disease (bony tumors that affect limb growth) since she was a small child.

First and foremost, Jessica's is a story of courage, remarkable resilience, and a seemingly indestructible sense of humor. But it's also a story of the power insurance companies currently exercise over doctors' ability to prescribe treatments.

There's probably no more contentious issue in both Washington and our communities at this moment than health care reform. It's that rare issue that is both national in scope and personally important. The bills before Congress are terribly complex; indeed the central, broad-brush issue involved is terribly complex: What should be the role of government in maintaining our individual well-being?

I'm a reporter, not a pundit. It's not my job to lecture; it's my job to tell stories. I have long thought, however, that the best way to understand a complex issue is to first do the hard work of educating oneself on what's involved, and then to filter that information through the lens of actual experience.

A lot of the health care debate hinges on whether or not privately-run insurance companies do the best job possible of safe-guarding their policy-holders' health. I've never had to turn my life over to an insurance company, but Jessica Penner has. To me, that makes her experiences as relevant to the debate as the wisest words of the wisest policy wonk in the world.

Programming note: Virginia Insight (today at 3 pm) addresses an important health care issue, the ethics of human research trials. Tom Graham's guest will be Robin Fretwell Wilson, J.D. - Professor of Law, Washington and Lee University, and co-editor of the new book, Health Law and Bioethics: Cases in Context.